Well, here we are…we have prayed for a chance to get this EEG in for many weeks and here we are. We are in the peds dept. at Rush Pres. surrounded by kids in much worse shape.
Danny is very excited about this b/c he is able to have time on a Wii. Joshua is able to stay with me tonight. I am very thankful for this. I love having his presence. One thing that always stuns me about being in this hospital is that this seizure disorder is not much in light of all the tragedy around us.
A difficult part to this whole thing is how many times we must repeat his story. He gets very frustrated with the pokings, questions and I can’t blame him. I’m pretty tired of continually repeating myself for residents who have no say in his epilepsy treatment. That sounded a bit grumpy. I’m sorry. He hasn’t gotten hooked up with all of the equipment and video monitoring yet so he is still able to move around. but with the wii… LOL.
My Mom and Dad are taking care of the kids. Luke and Noah are continuing their schoolwork. Noah forgot his bag of clothes which actually turned out to be good! Mom is taking him to the resale shop for some clothes. He is getting so big! All the clothes that I have for him are shrinking. Luke got to see Wall-E last night and was so excited. He is very happy to be with Grandpa. Grandpa is a movie junkie.
Ella is baking cookies with Grandma. Need I say more? Oh, and painting nails. she got to go with Grandma to Bible study this morning. Life is good.
Our prayer for this time is that the epileptologists with discover how his seizures are changing and what we can do to help him with medicine and such. I would also ask to have you pray for a quick discovery so we are not having to be in the hospital for long. Danny doesn’t mind but we miss everybody.
Danny, as I type, has a magician who is making him laugh and oh, she is sooo cool! What a wonderful girl! Yeah, he is having SUCH a hard time with being here. 🙂
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